Thread:ImLola/@comment-35564866-20180529102219/@comment-35564866-20180531234133

I do believe it takes one physician who really does care and has a desire to get to the bottom of things. I love my primary doc but if I hadn’t found the right neurologist who looks at the big picture I would probably to this day not have a clue about why I have migraines, seizures, chronic joint pain, etc, etc. Primary Care doc treated them all as separate issues. No, many of the Connective Tissue/Auto-immune disorders and diseases are truly puzzles that must be connected.

Don’t let them give up on you so to speak. You really have to be your own advocate. Sadly too many older docs don’t keep up on continuing education and new research findings or articles. I know I have these issues courtesy of my Swedish grandmother. If she were alive today she’d have had a proper diagnosis. My maternal Aunt also has an autoimmune disease. My mother got very lucky she didn’t end up with any of this.

I don’t want you to think you have to live in pain with constant vertigo and nausea. There is an answer, I promise. You just have to find a doctor who will be willing to play detective and take a hard look at your entire medical history. Neurologists can be a good start, I have one now that I’d never leave. But I also saw three prior who didn’t ever think to look at the bigger picture.

Even as a nurse I only knowingly treated one single little patient with Lupus. I didn’t even connect the dots on myself 🙈.

There is always a reason for vertigo, different types I’m sure you know already. But it is a symptom of something, and that’s the “something” that they should be searching for.

If this neurologist or the next don’t want/can’t find a cause and put it all together I think an immunologist would be the next step. Three hours is a long way, since you already know you have arthritis of any type, a rheumatologist is another avenue. I wish you could see my neurologist but I’m in OH. I think I saw you were in Illinois, I believe he did his residency there. I could always ask him for referrals in your area for you. Let me know if you’d want that. I looked at ED syndrome but I don’t think that’s you from what you’ve said. I’m sure you’ve looked at Meniere’s Disease, if not there is a possibilty. Maybe it is benign positional and the other symptoms are another condition entirely.

Definitely need a doc who loves puzzles. It will be so worth it though for you to get your health back on track. I can deal with lots but Vertigo and nausea/vomiting and I freak out and cry like a baby. I don’t know how you haven’t yelled and screamed at your doctor to fix you. You must be so patient Lola. I’m happy you have new avenues to explore, I’ll be here praying you find your answers and some respite as soon as humanly possible. 💞