Thread:ImLola/@comment-35564866-20180529102219/@comment-35564866-20180530141621

Ooh, I’m not sure I’d like your doctor. Sometimes they can say the most insensitive things to their patients 😡. I am guessing they checked you for fibromyalgia and Lyme Disease too, hopefully? Mono can definitely trigger underlying issues. I just had it in 2013, thankfully it didn’t hit me as hard as I was fearing with all my “stuff.” But I do have a friend who has basically never been the same after having a chronic case of mono that showed active symptoms for a year, and has now caused him to just feel like utter crud most days.

Did you ever see an immunologist or a infectious disease doc-you don’t have to answer here- I have seen them be much more on the ball with finding the root cause of issues. This was observing them in hospitals, I’ve never seen one personally since I have a great team of docs set up for my various needs currently.

Sometimes even though it’s terrible to receive a chronic diagnosis, it can also be a relief. The “we don’t know what/why/how you’re feeling so bad or are so ill” is such a frustrating place to be in. I went only God knows how many years before I found a very thorough neurologist who was able to put together all the pieces of the puzzles and get my diagnosis rolling. I hate/love him for it 😼.

Can we chat in here, in a chat box or something so I can give you my email? I thought I saw that function somewhere around this forum.

I will keep sending out good thoughts for your healing in to the great big universe. The muggy weather and heat we’re having here in the tri-state area can’t be helping you. I know it’s not helping me 👎 and thunderstorms are coming any hour now. Take care of yourself the best you can. Don’t stay on the game so long. It’s easy to do and I’m just as guilty as you 🤭. I’ve been up since 4am so I am off in a bit for a nap. Ha, I sound like a little old lady- my mother doesn’t even take naps. Ah well, she is truly as healthy as a horse!

Hugs, Em